For those of you who are not geeks, or not healthcare geeks, I have spent the last week in Chicago at the biggest HIT (Health IT) “geek-out” in the world. Some 42,000+ people gathered in Chicago for the annual HiMSS (Health Information Management Systems Society) meeting. It is truly an overwhelming experience. On the first full day of the conference I got lost twice. Not an auspicious start.
As a member of the Connected Patient Committee for HiMMS, I participated in the Patient Engagement Symposium which brought together individuals passionate about using HIT to improve health in patients and communities. ONC representative Lana Moriarty (Office of the National Coordinator) spoke to the government’s goals along these lines. E-patient Dave Bronkart, a celebrity among patients passionate to change our healthcare system into a patient-centered and patient-empowered one, came to watch his personal physician discuss changing care models and shared decision making. Amy Gleason of CareSync presented the patient’s viewpoint when it comes to dealing with multiple portals. The highlight of the day was a call to action, voiced below in the video by Regina Holliday, well-known advocate for patient access to medical records. The “call” was made by Dr. Farzad Mostashari, former National Coordinator for Health Information Technology at the U.S. Department of Health and Human Services. On the day before the conference began, CMS (Center for Medicare Services) proposed dropping the Meaningful Use (MU) requirement in Stage 2 (of three) from 5% of patients being able to view, download or transmit their medical records to ONE patient. Most individuals in the patient advocacy arena feel this proposed change sends a message to health systems and providers that patient access to their records is either no longer a priority or special interests have pushed this change of heart. This seems particularly odd in an environment of increased encouragement of patient involvement in their own healthcare. Dr. Farzad, e-patient Dave, Ms. Holliday, and myself are just a few of the many individuals who think this is the wrong message to send. As a consequence a Day of DataIndependence on July 4 has been declared, and patients are asked to request electronic access to their medical records by calling their physicians and hospitals and asking for their medical records in electronic format.
If access to your medical records, or your family’s medical records, is important to you (and it certainly should be!) watch this space for more information in the next few weeks. For information from the Society for Participatory Medicine regarding this issue, follow this link: No MU without ME.